Tony’s Aunt Barbara passed away in the early hours of Sunday morning, aged 62 years.
Babs, as she was universally known, was wife to Alistair, mother to Kellie, Gary and Emma, and grandmother to four beautiful children. All of her immediate family knew Babs for her love, compassion, support and sense of humour.
Babs suffered from PSP* for the last 9 years of her life, but until very recently she could still show in her eyes that she had not lost her sense of humour. In April of this year, when we had to complete our own sad journey to Scotland, we saw that her eyes were filled with love for all those around her. We know that even if she couldn’t articulate those sentiments with her trademark smile and laughter, they were with her to the very end.
No One Walks Alone
*Progressive supranuclear palsy (PSP) is a neurodegenerative brain disease that has no known cause, treatment or cure. It affects nerve cells that control walking, balance, mobility, vision, speech, and swallowing. Five to six people per 100,000 will develop PSP. – See more here
In the UK..
The PSP Association is dedicated to the support of people with Progressive Supranuclear Palsy (PSP) and the related disease Cortico Basal Degeneration (CBD), and those who care for them.
In the USA..
CurePSP is the leading nonprofit advocacy organization focused on prime of life neurodegenerative diseases, a spectrum of fatal brain disorders that often strike during a person’s most productive and rewarding years. Understanding the causes of and treatments for neurodegenerative brain diseases is one of the great healthcare imperatives of the 21st century, and CurePSP is a pioneer in this effort.
Research into rare prime of life diseases, especially progressive supranuclear palsy (PSP), holds promise for opening new pathways to research for more prevalent neurodegenerative diseases, such as Alzheimer’s disease and Parkinson’s disease. Founded in 1990, CurePSP has funded more than 160 research studies and is the premier source of information and support for patients and their families, care partners, investigators, doctors and other healthcare professionals.
No One Walks Alone